10 steps forward, 2 steps back

Ok, I know I said on Thursday that I would update on Friday.  Time has a funny way of escaping me here, which is probably a good thing.  Since my last post A LOT has happened.  On Friday Callan's chest was closed, on Saturday his breathing tube was removed, and Sunday and Monday several lines were removed including all of his chest tubes!  He has been taken off all medications but one and the doctor's repeatedly say that they "never have a cardiac case off their meds this quickly".  That's my boy :)  I was hopeful and thinking that we would have him home by the end of the week based on the remaining milestones left to accomplish: all meds by mouth, all feeds by mouth, and off of oxygen.  As of yesterday evening Callan was taking all meds by mouth and all feeds by mouth, but still needed some oxygen.  However, this morning things looked a little different.  Feeding has become the new issue, which we were warned time and time again was the thing that "kept kids here".  While working with the Occupational Therapist this morning we confirmed that Callan is not breathing while he eats, which is causing him to fatigue to quickly and not finish his entire feed as well as aspirate on his milk, which puts him at danger for pneumonia.  Because of this, he had to have a feeding tube placed in his nose so that whatever he doesn't eat via mouth can be given to him to ensure that he gets all the calories he needs.  All in all, his recovery has been miraculous and this is a minor set back.  But, to be honest, I am a little disappointed that this probably means more time here.  I am so ready to bring him home, sleep in my own bed, and get into the new routine of choas that will be my life with an infant and a soon to be 2 year old :)  More updates to come soon, I promise and an updated picture :)