The Big Fat Let Down

So today was our "big" appointment at Rady's for the repeat echo to confirm the diagnosis as well as meet the surgeon.  Matt and I have been compiling an extensive list of questions and both spent the day nervously awaiting this appointment.  Well, much to our dismay after the echo we found out that we were not meeting the surgeon today and would have to set up another appointment for that.  We are both feeling very frustrated with this for several reasons including the hassle of going down there and finding care for Rylie as well as waiting who knows how long to get the information that we really want to hear.  In terms of the echo, no new information was given today.  They confirmed the diagnosis and the plan continues as is.  I guess today is just another one of God's many lessons for me through all of this.  Today's lesson: worrying is such a waist of time and energy!  I hate to admit that He has been trying to teach me this lesson for many years.  I'm getting better as I get older at least :)